A whole new world: the experiences of adolescents with beta-thalassemia major as they transition to adult care
| dc.contributor.advisor | Barakat, Caroline | |
| dc.contributor.advisor | Weaver, Robert | |
| dc.contributor.author | Vizza, Julie | |
| dc.date.accessioned | 2018-07-16T13:51:26Z | |
| dc.date.accessioned | 2022-03-29T16:56:57Z | |
| dc.date.available | 2018-07-16T13:51:26Z | |
| dc.date.available | 2022-03-29T16:56:57Z | |
| dc.date.issued | 2018-04-01 | |
| dc.degree.discipline | Community Health | en |
| dc.degree.level | Master of Health Sciences (MHSc) | en |
| dc.description.abstract | Beta-thalassemia Major (b-TM) is a chronic medical condition. Effective illness management requires adherence to arduous medical treatment to ensure a life free of life-threatening complications. This qualitative study characterizes the experiences of adolescents living with, and managing b-TM on the cusp of transitioning from pediatric to adult orientated institutions of care. Using the methodological approach of interpretive phenomenology and conducting semi-structured interviews with five participants, five themes were identified. These include: knowledge and understanding of b-TM; role of familial support; self-reflection and disclosure; comradery; and readiness to transition, including the impact of incorporating a Health Transition Specialist as a member of a comprehensive health care team. The findings identify key factors that impact the daily lives of adolescents with b-TM, as they adapt to required self-management practices, navigate the health care system, and transition to adult care. | en |
| dc.description.sponsorship | University of Ontario Institute of Technology | en |
| dc.identifier.uri | https://hdl.handle.net/10155/924 | |
| dc.language.iso | en | en |
| dc.subject | Adolescent | en |
| dc.subject | Chronic illness | en |
| dc.subject | Beta-thalassemia major | en |
| dc.subject | Transition | en |
| dc.subject | Autonomy | en |
| dc.title | A whole new world: the experiences of adolescents with beta-thalassemia major as they transition to adult care | en |
| dc.type | Thesis | en |